posted October 10, 2014 08:10 PM
If everything goes as planned in her life, 29-year-old Brittany Maynard's death will occur on Saturday Nov. 1 — in her bed, on an upper floor of her Portland, Oregon home, with cherished music filling the room.Lately, though, nothing in Maynard’s life has flowed like she once dreamed — no children with her newlywed husband, no more time. She has brain cancer, grade 4 glioblastoma. In April, a doctor told her she had six months to live.
Now, Maynard has embarked on a rare farewell bathed in politics and poignancy — all painstakingly organized and openly shared, she said, in a bid to help to change laws for dying Americans who feel they are forced to endure the full, gruesome descent of a terminal illness.
Maynard made three choices that are elevating her final days to viral immortality. She moved with her husband, Dan, from San Francisco to Oregon — one of five states where doctors can legally prescribe life-ending drugs to the dying. She obtained the two bottles of lethal pills and selected the precise moment, place, guests and soundtrack for her last breaths. And she posted the reasons for all this in a video that, as of Thursday night, had received more than 5 million views.
"I don't want to die. But I am dying. Death with dignity is the phrase I'm comfortable using. I am choosing to go in a way that is with less suffering and less pain," Maynard told NBC News Thursday night, speaking from the Columbia River Gorge, 30 minutes east of Portland.
She was on a "get-away" with her husband. She had endured an awful night and morning — due to the tumor, her brain is swelling, pressing against her skull, causing excruciating pain and robbing her of sleep. Medications are not working as well lately to ease the swelling or mask the pain, she said.
"When people use the word suicide, it’s just highly inflammatory and just incorrect because I am already dying from cancer. And people who commit suicide are typically people who want to die, and are killing themselves. I’m not killing myself. Cancer is killing me."
She knows her story has fueled a global dialogue about her choice and about the issue. She knows some people do not support her selected path. She is using her precious, remaining days to keep that conversation alive.
"What does seem necessary is to get people educated about this topic, to have discussions be based on facts, not fear, and really have it be a healthcare choice, which is what makes it a freedom," Maynard said.
"Not everybody has to agree that it’s the right thing — because they don’t have to do it. It’s an option. And it’s an option that, for me, has provided a lot of relief because the way that my brain cancer would take me organically is very terrible. It's a horrible way to die. The thought that I can spare myself the physical and emotional, lengthy pain of that, as well as my family, is a huge relief."
She chose Nov. 1 because it falls just after her husband's birthday - a moment she hopes to enjoy - and because it gives her family and closest friends a date for which they can prepare.
"That’s what I’m planning for, unless a cure is miraculously discovered in the next couple of weeks, in which case I will certainly avail myself to that," Maynard said. "The beauty of death with dignity, as a patient healthcare choice, is the patient maintains autonomy and can always change their mind.
"So if I have a really terrible grand mal seizure next week and my symptoms get much worse, I may choose to move up my date. Or, if I’m feeling really wonderful on November 1, and I have reason to continue to live longer, I will. But for me there is an end date, and it’s relatively soon in sight, and that’s the nature of my terminal illness: I have a very large brain tumor and it’s killing me."
quote:
She resonates because we were all once 29.
Advocates in the “death-with-dignity” cause — a decades-long push to give more Americans access to legal, end-of-life options — view Maynard’s crusade as “a tipping point.” They assert she seems to be engaging scores of younger people who likely never mulled this tortuous issue, typically faced by older folks.“This movement is gaining traction by the hour,” said Barbara Coombs Lee, president of Compassion & Choices, a national nonprofit dedicated to expanding the rights of the terminally ill. “You have had Stephen Hawking saying, ‘I want this option,’ and Desmond Tutu saying he is devoting the last years to death with dignity. Then, suddenly, here’s this thing with Brittany, and you say: ‘It’s really happening. The tide has turned.'"
Maynard and her friends approached Compassion & Choices, asking if the Denver-based organization “would like to be part of our plan,” Coombs Lee said.
The group responded: “Yes, we would be honored,” but Coombs Lee emphasized, “This is her campaign.”
Image: Brittany Maynard and husband Dan Diaz at their Sept. 2013 wedding Tara L. Arrowood / Compassion & Choices - www.TheBrittanyFund.org
Brittany Maynard and husband Dan Diaz at their Sept. 2013 wedding. Maynard who has been diagnosed with terminal brain cancer, has chosen to end her life with doctor-assisted suicide.
“She resonates because we were all once 29. A lot of us remember when we were starting our families. And a lot of us have lost a loved one to a brutal disease,” Coombs said. “She is aware of the injustice that she had to uproot herself, her family, her home and establish a new home as a legitimate Oregon resident in order to qualify” to get the fast-acting drugs that, when swallowed, will caused her to fall asleep, depress her breathing, and end her life.
An attorney and former ER and ICU nurse, Coombs Lee coauthored Oregon’s Death with Dignity Act, on the books since 1997. In the ensuing years, more than 1,170 Oregon residents have obtained end-of-life prescriptions under the law, and more than 750 people have used them, according to Oregon state health records.
Four other states — Washington, Montana, Vermont and New Mexico — have aid-in-dying laws.
quote:
"I will die upstairs in my bedroom ... with my mother and my husband by my side."
But Oregon ranks among the states with the highest “suicide rates,” said Jennifer Popik, legislative counsel for the National Right to Life Committee, which calls each of those deaths “a preventable tragedy.”“While the case of Brittany Maynard is tragic, the fact of the matter is that in the states where doctor-prescribed suicide is legal and records are kept, most people seek suicide not because they are experiencing pain from illness, but because they feel like they are becoming a burden or losing autonomy,” Popik said.
“States that have laws legalizing doctor-prescribed suicide are turning their backs on vulnerable populations of people who are either depressed or worried about what their future holds,” she added. “… These laws do not offer a patient ‘dignity’ but only abandonment from health care workers and family who are supposed to care for patients and loved ones in these dire times.”
In the days that remain for her, Maynard hopes to spend as many hours outdoors as her body and energy will allow. Seizures and fatigue have set in.
Brittany Maynard: Dying With Dignity Provides 'Sense of Relief'
NBC News
But with an exit plan in place, she knows she has some control over the inevitable decline the tumor will cause.
Her final moment has been mapped. And it does not sound scary.
"I plan to be surrounded by my immediate family, which is my husband, and my mother and my stepfather and my best friend, who is also a physician," she says in the video.
“I will die upstairs in my bedroom that I share with my husband, with my mother and my husband by my side, and pass peacefully with some music I like in the background."
First published October 9th 2014, 5:08 am
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http://www.nbcnews.com/health/cancer/why-newlywed-brittany-maynard-endin g-her-life-three-weeks-n221731
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