Author
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Topic: Cannot take most meds used for agonizing continuous pain
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Lexxigramer Moderator Posts: 6115 From: The Etheric Realms...Still out looking for Schrodinger's cat...& LEXIGRAMMING.♥.. is my Passion! Registered: Feb 2012
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posted March 04, 2017 01:34 AM
quote: Originally posted by Kannon McAfee: Wow! I'm just astounded at what you've been through. You are strong beyond measure Thank you for being present with us in this forum. Don't hesitate to email me [ kannonmcafee at gmail ] to let me know what herbs do work for you and to see if I can send you anything from my own stock. I will help you if I can.
Thank you so much for your caring kindness.If I think of anything I will let you know. Thank you for the offer. I try to stay strong but sometimes I am about ready to give up. It is not easy. So many folks complain about having just one chronic illness; and yes, that is awful too. However most folks have no idea what it is like living with many ills stacking on top of one ill after another. I have actually had people tell me they would commit suicide if they were me and even suggested that is what I should do. There are moments when it is tempting. Living below the poverty line makes the suffering worse both physically and psychologically. When I feel I cannot handle it any longer; I just tell myself give it 24 hours and hold off until then. Oh it is very hard to do that, to not give in, but; that does the trick so far; and oddly knowing that suicide is an option helps keep me from just going off and doing it. Hope that made sense. Even some famous people have said much the same. quote: It is always consoling to think of suicide: in that way one gets through many a bad night. ~Friedrich Nietzsche
quote: We can consciously end our life almost anytime we choose. This ability is an endowment, like laughing and blushing, given to no other animal... in any given moment, by not exercising the option of suicide, we are choosing to live. ~Peter McWilliams
quote: If I had no sense of humor, I would long ago have committed suicide. ~Mahatma ~Gandhi
However: I have to disagree with the following quote however: quote: Suicide is a permanent solution to a temporary problem. ~Phil Donahue
The problem with most chronic disabling ills is that they are NOT a temporary problem. I guess Phil Donahue did not think of that.I am not alone; lots of chronically ill disabled folks out there. http://www.facebook.com/ChronicIllnessOnThemighty/?hc_ref=NEWSFEED&fref=nf If I made any typos I will fix them when Randall restores the edit function. In the meantime I ask that no one quotes me please. ------------------ Lexigramming Newsletter
NumeroLexigrams ~I remember, therefore I am immortal ~Lexxigramer Click here to read My Lexigramming Biography/over 1/2 a century to date Lexigramming ~The present time is theirs, but the future is mine.~Никола Тесла }><}}('>~ IP: Logged |
Lexxigramer Moderator Posts: 6115 From: The Etheric Realms...Still out looking for Schrodinger's cat...& LEXIGRAMMING.♥.. is my Passion! Registered: Feb 2012
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posted March 04, 2017 01:39 AM
Found two typos in my post above. Ugh.There may be more. Ugh.IP: Logged |
Lexxigramer Moderator Posts: 6115 From: The Etheric Realms...Still out looking for Schrodinger's cat...& LEXIGRAMMING.♥.. is my Passion! Registered: Feb 2012
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posted April 07, 2017 12:21 PM
More diagnosis added to my long list. Sigh.....
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Randall Webmaster Posts: 83519 From: From a galaxy, far, far away... Registered: Apr 2009
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posted April 08, 2017 01:35 PM
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Lexxigramer Moderator Posts: 6115 From: The Etheric Realms...Still out looking for Schrodinger's cat...& LEXIGRAMMING.♥.. is my Passion! Registered: Feb 2012
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posted April 08, 2017 09:44 PM
Thank you Randall. Sigh, now my husband has developed Arthritis on top of his disabling other ills. Sigh...just have to do our best. IP: Logged |
Randall Webmaster Posts: 83519 From: From a galaxy, far, far away... Registered: Apr 2009
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posted April 09, 2017 03:49 PM
*sigh*IP: Logged |
Lexxigramer Moderator Posts: 6115 From: The Etheric Realms...Still out looking for Schrodinger's cat...& LEXIGRAMMING.♥.. is my Passion! Registered: Feb 2012
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posted April 09, 2017 03:58 PM
As long as I am able to Lexigram; I will survive. IP: Logged |
Sulkyarcher Knowflake Posts: 1342 From: Registered: Dec 2013
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posted April 10, 2017 01:54 AM
I have no words, just bright energy to send you!!! ((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((( IP: Logged |
Lexxigramer Moderator Posts: 6115 From: The Etheric Realms...Still out looking for Schrodinger's cat...& LEXIGRAMMING.♥.. is my Passion! Registered: Feb 2012
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posted April 10, 2017 11:11 AM
Sulkyarcher Thank you!
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MoonMystic Knowflake Posts: 641 From: Registered: Nov 2016
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posted May 06, 2017 09:18 PM
Lexx, I'm pretty late on this thread. You certainly have a lot of struggles. Anything I might have thought of was recommended already. I hope something has helped in some way. Haven't seen you much, I hope it's because you're enjoying your spring. Yet the weather might still be cold there. I'm sending you healing thoughts. IP: Logged |
Lexxigramer Moderator Posts: 6115 From: The Etheric Realms...Still out looking for Schrodinger's cat...& LEXIGRAMMING.♥.. is my Passion! Registered: Feb 2012
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posted May 06, 2017 10:16 PM
Thank you for caring MoonMystic.. Having bad time of it of late. On steroids again. Hopefully will be better in a couple days. I usually get worse about every 5 days or so; and then it lets up some. But some months I get hit harder. Spring for some reason is very hard. Except for going to doctors; have not been out, even here at home to enjoy anything else, even my yard, since September or so. Only got outside maybe 6 times last summer. Hopefully will have more luck this coming Summer. Having a lot of trouble walking.:'( Multiple tendon ruptures last year from drug reactions. My legs knees to toes are a wreck.:'( OK...off to sleep some; I hope. IP: Logged |
Randall Webmaster Posts: 83519 From: From a galaxy, far, far away... Registered: Apr 2009
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posted May 07, 2017 02:19 PM
Sweet dreams.IP: Logged |
Lexxigramer Moderator Posts: 6115 From: The Etheric Realms...Still out looking for Schrodinger's cat...& LEXIGRAMMING.♥.. is my Passion! Registered: Feb 2012
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posted May 07, 2017 05:38 PM
Thank you Randall. Dreams were OK; but it was cold last night and cold today too. Brrr. Frost warning for tonight. Brrrrrrr. IP: Logged |
MoonMystic Knowflake Posts: 641 From: Registered: Nov 2016
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posted May 08, 2017 02:03 PM
quote: Originally posted by Lexxigramer: Thank you for caring MoonMystic.. Having bad time of it of late. On steroids again. Hopefully will be better in a couple days. I usually get worse about every 5 days or so; and then it lets up some. But some months I get hit harder. Spring for some reason is very hard. Except for going to doctors; have not been out, even here at home to enjoy anything else, even my yard, since September or so. Only got outside maybe 6 times last summer. Hopefully will have more luck this coming Summer. Having a lot of trouble walking.:'( Multiple tendon ruptures last year from drug reactions. My legs knees to toes are a wreck.:'( OK...off to sleep some; I hope.
Lexx,
I didn't read the whole thread but for cartridge, have you tried knox geletin or chicken stock from the bones? I'm trying the knox G for my health problems, not certain how well this is going to help but in case you hadn't before done that, I thought to share with you. I'm very sorry it's been a rough time for you. Hopefully your climate there will soon become more comfortable so that you can be out to enjoy some nature. I hope your sleep helps lessen some off these pains. sending (((hugs))) your way. Snuggle in your bed and keep warm. Until these cooler temps vanish. IP: Logged |
Lexxigramer Moderator Posts: 6115 From: The Etheric Realms...Still out looking for Schrodinger's cat...& LEXIGRAMMING.♥.. is my Passion! Registered: Feb 2012
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posted May 08, 2017 05:39 PM
quote: Originally posted by MoonMystic: Lexx, I didn't read the whole thread but for cartridge, have you tried knox geletin or chicken stock from the bones? I'm trying the knox G for my health problems, not certain how well this is going to help but in case you hadn't before done that, I thought to share with you. I'm very sorry it's been a rough time for you. Hopefully your climate there will soon become more comfortable so that you can be out to enjoy some nature. I hope your sleep helps lessen some off these pains. sending (((hugs))) your way. Snuggle in your bed and keep warm. Until these cooler temps vanish.
cartridge? Thank you for the suggestions. And yes; have tried those too. But one never knows what all I have tried; so I appreciate any advice! Sleep never eases the pains. I dream the pain; which usually awaken me. I often die over and over in my dreams. IP: Logged |
Randall Webmaster Posts: 83519 From: From a galaxy, far, far away... Registered: Apr 2009
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posted May 09, 2017 12:38 PM
At least you are able to sleep and dream.IP: Logged |
Lexxigramer Moderator Posts: 6115 From: The Etheric Realms...Still out looking for Schrodinger's cat...& LEXIGRAMMING.♥.. is my Passion! Registered: Feb 2012
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posted May 09, 2017 01:45 PM
I agree! When kind of use to the nightmares; they become the norm unless the pain gets very bad and I wake up. But yes; sleeping even an hour or two and dreaming anything is still a positive thing. I have gotten to the point of telling myself in dreams that yes there is pain but the rest treat as a movie and try and enjoy the suspense. So even dying in dreams becomes a weird fascinating thing even though painful and terrifying. Its like being in The Matrix. The only time to worry is when things become too real; like me looking like my waking self. IP: Logged |
Randall Webmaster Posts: 83519 From: From a galaxy, far, far away... Registered: Apr 2009
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posted May 10, 2017 10:44 AM
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Randall Webmaster Posts: 83519 From: From a galaxy, far, far away... Registered: Apr 2009
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posted May 11, 2017 03:34 PM
Some physicists say this world is the matrix.IP: Logged |
Lexxigramer Moderator Posts: 6115 From: The Etheric Realms...Still out looking for Schrodinger's cat...& LEXIGRAMMING.♥.. is my Passion! Registered: Feb 2012
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posted May 11, 2017 07:16 PM
quote: Originally posted by Randall: Some physicists say this world is the matrix.
Reminds me of the Matrix,or Blue Men experience which I had and related in this thread: http://www.linda-goodman.com/ubb/Forum25/HTML/005420.html ------------------ Click here to read My Lexigramming Biography: over 1/2 a century to date ♥ Lexigramming ♥ }><}}('> IP: Logged |
Randall Webmaster Posts: 83519 From: From a galaxy, far, far away... Registered: Apr 2009
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posted May 12, 2017 12:25 PM
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Lexxigramer Moderator Posts: 6115 From: The Etheric Realms...Still out looking for Schrodinger's cat...& LEXIGRAMMING.♥.. is my Passion! Registered: Feb 2012
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posted May 13, 2017 03:51 AM
So you read it? Was definitely high on my weird unexplained wtf? experiences list. As to the Blue Men; that refers to: quote: "A Matter of Minutes" is the third segment of the fifteenth episode from the first season (1985–86) of the television series The Twilight Zone.
http://en.wikipedia.org/wiki/A_Matter_of_Minutes Also reminds me of Dark City. http://en.wikipedia.org/wiki/Dark_City_(1998_film) And The Thirteenth Floor. http://en.wikipedia.org/wiki/The_Thirteenth_Floor IP: Logged |
Magikaal Knowflake Posts: 518 From: Oz Registered: Apr 2016
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posted August 09, 2017 04:40 AM
Lex, sorry to hear about all these conditions you have to live with and even more sorry to hear about what you went through. I don't know much about most of your ills except maybe a tiny bit for ankylosing spondylitis (AS) which my partner has. When I met him, he was taking gelatin and occasional glucosamine supplements along with a steady stream of painkillers for the flare ups. Our running joke is that he is the master of soft furnishings since he cradles himself with towels and pillows every night to support himself. He told me all about tossing and turning and not being able to sleep properly for years. I suggested fish oil capsules (omega 3s) which he didn't believe in at first - he's a huge skeptic of natural methods but it made such a difference that he has been taking fish oil capsules every night for the past 6 years despite complaining bitterly about fishy burps etc initially. He gets the odorless ones now but they are expensive. He does not take as much medication now compared to previously but his condition still flares up from time to time. The other thing that came to mind is diet, specifically the London AS diet based on the research of Dr Alan Ebringer and colleagues. Some AS sufferers online have reported positive results when they followed it but the diet is extremely restrictive. I can't convince my partner the skeptic but am curious if you have tried it. If you haven't, I thought that trying it might bring some relief, at least from the AS component. You would have to follow the diet strictly and reduce/eliminate starchy foods. If you aren't familiar with it I would encourage you to find out more. Diet alone won't fix everything obviously but it's a start. I liked The Positive Pear's site https://thepositivepear.com/tag/the-london-as-diet/ as one example of a holistic approach. I can't think of anything else but my sincere best wishes to you for dealing with the pain. My partner tells me his flare ups are excruciating so it must be infinitely worse for you. i don't know how you do it. IP: Logged |
Randall Webmaster Posts: 83519 From: From a galaxy, far, far away... Registered: Apr 2009
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posted August 09, 2017 10:39 AM
The odorless ones aren't as effective. If you keep them in the fridge, you won't get burps. They need to be processsed through the stomach. Odorless ones are enteric coated and processed in the intestines. IP: Logged |
Magikaal Knowflake Posts: 518 From: Oz Registered: Apr 2016
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posted August 09, 2017 08:24 PM
Thanks Randall for that. I'll tell him but he's very stubborn. IP: Logged |