Author
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Topic: What does a PORT for chemotherapy infusions feel like?
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Lexxigramer Moderator Posts: 8649 From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion! Registered: Feb 2012
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posted July 25, 2022 07:17 PM
What is having surgery to install a chemotherapy port feels like and after it in implanted in upper chest what problems are possible⁉️👽 Is it hard to get comfortable and rest with it sticking up⁉️Am going to have it a long time 😢 unless those miracles manifest for me very very soon🌈💞😎🌄🌞
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Lexxigramer Moderator Posts: 8649 From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion! Registered: Feb 2012
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posted July 27, 2022 06:17 PM
Got surgery for it today. I freaking hate it😢🤬👽 Now for chemotherapy yippie skippie dodah👽🤮🤪🥵ughIP: Logged |
Lexxigramer Moderator Posts: 8649 From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion! Registered: Feb 2012
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posted July 28, 2022 03:01 AM
Pain pain pain😢 It sucks when one is allergic to ALL bandages and cotton too. Now the surgical site is raw and skin inflamed and bleeding from reactions to cotton and plastic and vynil 👽🤬 Just seems like I go from one hell to a new hell added to my pain everytime the medical community messes with me🤬 They also tried to give me drugs yesterday that can be deadly to me even after being told no to those drugs and even though Very clearly on my chart allergy adverse reactions list🤬👽And nurse hygiene is often a joke🤬 Long nasty uncovered fingernails. Putting on gloves with dirty hands just deposits their filth to the outside of the gloves. Raising face masks to sneeze, cough or whatever makes no sense either And equipment is often not sanitized🤬 The bathrooms are often urine splattered toilets and on lid and on floor leaving trails to sinks. People take their masks off in bathrooms and come out with them off. Hands are rarely washed. My shoes get sticky from urine and whatever else crap. The door knobs are always slimy and sticky. Snotty green boogers kids without masks run amuck and spew on people and touch them and no one stops this activity🤬 I do not feel safe in hospitals and at doctors etcetera. ------------------
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Aries Eagle Moderator Posts: 2159 From: 🦅🔱 Registered: Jan 2013
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posted July 29, 2022 12:42 PM
I pray that may you heal from your sickness and recover by the power of God’s unconditional love and blessing. Get well very soon.💐I wish I could help but I really don't know anything about chemotherapy... I remember you said you suffered from fibromyalgia did the doctors got it under control? I suffered from it after some incompetent doctor gave me a psych-drug. I found the solution for it in case it was induced by a psych-drug (my case). IP: Logged |
Lexxigramer Moderator Posts: 8649 From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion! Registered: Feb 2012
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posted July 29, 2022 02:32 PM
quote: Originally posted by Aries Eagle: I pray that may you heal from your sickness and recover by the power of God’s unconditional love and blessing. Get well very soon.💐I wish I could help but I really don't know anything about chemotherapy... I remember you said you suffered from fibromyalgia did the doctors got it under control? I suffered from it after some incompetent doctor gave me a psych-drug. I found the solution for it in case it was induced by a psych-drug (my case).
Thank you for your kind caring words Aries Eagle 💞🌈 I am not a believer in God(s) or prayer. However I will take your caring words as psychic summons and blessings for good luck and healing from wherever or whomever the healings and good luck come 😎🌈 because no matter what they good luck and healing intentions nevertheless😎💖🌈Oh my I wish fibromyalgia was the only problem. 😢 Saddened that you suffered from it💙 No mine is not drug induced it is autoimmune. The archilles tendons we're torn and ruptured by a prescription drug though. As to my myriad illnesses, I inherited all the crap and the rest from injuries and from illneses and adverse reactions to prescription drugs that has left me with multiple types of permanent damage to my central nervous system and neurological issues from the drus and torn ruptured Achilles tendons which have severely impaired !y ability to walk😢🤬 Please stop reading if I am bothering you please💙 Posting about the nightmare life I have, and my disabled husband too really helps me cope😎 It just helps to be able to at least vent in writing even if no one wants to know.💙 No one probably wants my list of disabled and agonizing conditions but if I cannot post it here then where could I post?⁉️ Anyhow at the moment my prime issues are at least 3 types of very rare female cancers caused by drugs my mother took to prevent miscarriages. It was routinely given to women from about 1933 to 1971 who had already miscarried. I was born in 1954. That means that I am a DES daughter 😢👽🤬 So now I am fighting for my life because of advanced cervical cancer, vaginal cancer, uterine cancer and adjoining pelvic abdominal areas😢😳 Too advanced to do surgeries first so they hope that chemotherapy and radiation will shrink the cancers so that I can have surgeries. On top of all that I have a damaged digestive system and ulcers and hernias and vomit every day since October 2019. Lost over 100 pounds without trying. Always nauseated and that is before the pending chemotherapy 😢 Degenerative disk disease of every disc in my entire spine. Every joint of my body even fingers and jaw etcetera are always in so much pain and all😢 Ruptured knees and severe bone spurs everywhere from head to toes even ribs jabbing into my neurological systems. Pain and partial paralysis rotate all over my body and there is nothing I can do about it😢 Various other skeletal damages as my bones and joints fuse and or disintegrate and grow even more bone spurs known as osteophytes. I feel like I am wound up in electrified barbed wire that is causing horrible spasms and burning electrical shock like pains. Heriditary Angioedema type3 adds to my woes. In the past 3 years I have become almost completely bed bound😢 I thought I was doing better because my diabetes has gone into remission needng s HH ots etcetera. But get to this..... now I have too low blood sugars and no on we knows why👽😳👽 Now I must eat all types of sugars to keep my blood sugar from dropping to dangerous low levels. I eat but am still of late losing a pound a day without trying. No one knows why👽 The is the thinnest I have been since about 1980😳👽 I am also anemic and must have Intravenous Iron infusions. I cannot digest iron from suppliments or plants. I gave up red meat and now I must have iron intravenously 👽 The list of severe degenerating bone issues is very long so not posting it all here. My jaw is even disolving😳👽😢 Then of course the demyinating poly neuropathy which is not diabetic but is from neurological damage. The neurologist said it is like Multiple Sclerosis but the pain and symptoms are much much worse and there is no real cure or treatment. I am going blind. I have to often crawl like a baby to toilet and when I go to Dr appointments, tests etcetera, I can barely get to car with a rolliator walker and must often literally crawl backwards down steps and then crawl forward to go up them. Due to severe damage to my feet and ankles I am totally unable to use a ramp👽 My feet and ankles do not bend that way. Our home is old and in shambles and we are too poor to get it fixed and get it retrofitted for our two person totally handicapped household😢 I just hope that I am not wasting what time I have left by trying to fight the cancers and get surgery hopefully😢👽😳 I feel so scared and lost these days. I need to talk about the things I am going through even if no one can help me.💙💙💙 It helps me feel like I can make it😎 Or at least less resigned. I am 67 going on 68 if I make it to November😎😳 My husband of 25 years is only 53 but has his own terrible and incurable health issues which are also Heriditary in nature. His father died from the rare liver disease which my beloved now has😭 He can live many years if it does not turn into cancer but will need yearly surgeries to fix liver ducts etcetera and needing a liver transplant is not uncommon. Weird disease it would eventually damage a new liver and no one knows why😢👽 He also suffers from intractable vomiting and intractable temporal lobe migraines and seizures and other conditions realated to that. The only cure for the rare type of migraines and brain damage is brain surgery and a frontal lobotomy😭👽 We are holding off on that for now.👽👽👽 He also has osteoarthritis and diabetes and severe digestive system diseases and again nothing can be done to really fix it all👽😭 He had to quit his good job as the head technology expert for the library here and the 12 other affilated libraries. He began having seizures from fluroesent lights and any flashy thingies on a computer screen👽😢 No it is so bad that he cannot look at Christmas lights or play video games or even watch Aspen and Birch trees when the wind causes them to shimmer and glitter😢👽 On the highway as a passenger, watching the electric poles seem to zoom by and he can have seizures😢 We both suffer from much much more than what I have listed😢👽 Such fun here😭 We two handicapped people trying to care for each other and struggling to survive under severe far below the poverty level conditions 😢 Aries Eagle 💖 Thank you for reading and you do not need to reply on all that. Just being permitted to post it all halps give me hope that we will survive all of these nightmares we are plagued with and get through it all and both heal.💖💞😎 Blessings and love to you Aries Eagle💖🌈🌄 Please pardon any typos my eyes are wonky today from aftereffects of the surgery the other day. Oh if you have any questions I do not mind answering them💙
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Take a look at my LexIgramming/LexAgramming Biography Nearly 2/3 of a century to date of ♥ LexAgramming Lexperience!🔠✍️ IP: Logged |
Lexxigramer Moderator Posts: 8649 From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion! Registered: Feb 2012
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posted July 29, 2022 02:36 PM
Aries Eagle 😎Have you read my various health issues LEXIGRAMS yet😎 I will post links to some. Here is a link to related health issues and having fun with ACRONYMS 😎 The links all go to my health related ACRONYMS and ANAGRAMS and LEXAGRAMS/LEXIGRAMS 😎 Also mentioning the specific names of things that I am afflicted with😢 Chronic inflammatory demyelinating polyneuropathy (CIDP) Acute inflammatory demyelinating polyradiculoneuropathy (AIDP) Multiple Drug Hypersensitivity Syndrome (MDHS) Thank you again for caring and posting💖 It is muchly appreciated 💖🌈
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Aries Eagle Moderator Posts: 2159 From: 🦅🔱 Registered: Jan 2013
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posted August 03, 2022 04:25 AM
With God's help, it will pass. 🌻IP: Logged |
Lexxigramer Moderator Posts: 8649 From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion! Registered: Feb 2012
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posted August 03, 2022 06:41 AM
quote: Originally posted by Aries Eagle: With God's help, it will pass. 🌻
Respectfully I must repeat myself on the god issue and prayers. quote: Thank you for your kind caring words Aries Eagle 💞🌈 I am not a believer in God(s) or prayer. However I will take your caring words as psychic summons and blessings for good luck and healing from wherever or whomever the healings and good luck come 😎🌈 because no matter what they are intended as good luck and healing intentions nevertheless😎💖🌈
Also as I illustrated on another note thread my views on prayers, wishes and gods. I am not a believer. Sorry if that offends💙😢Here is what I mentioned on another thread about my feelings on prayer and God etcetera 👽 In my point of view saying it will pass with God's help is the same as saying, do not worry because god will kill you and put you out of your misery👽😢 That's just too creepy to me👽. Here is what I said on that other thread: quote: Send summons to me for much needed miracles to come my way💙💖😎 No prayers please as I am not a believer in such things.👽 Also prayers are often insidious in their execution no matter what force or who is directing the prayers and it may well be the well meaning human connection psychic surges folks send that makes it appear that an outside agent is doing the answering of their prayers.😳👽 The insidious bit is when for example folks will say such things as;Poor Betty is in so much pain and agony😢😢😢 I pray that her pain and agony soon ends for her💖💙 Then lo and behold Betty drops dead soon after the well intended but sadly not well thought wording of the prayer or wish👽😳 Such things must be very carefully worded👽 The universe or whatever generally will take the fastest and simplest way to grant such wishes and prayers and so forth👽 Oh God they cry!!!! Betty has died why?????? We prayed for her to be out of her pain and agony soon👽😢 Well folks she has indeed been removed from her pain and agony as you all requested or wished for her You got exactly what you wanted.👽 So no prayers or wishes for me to be out of pain and agony please👽👽👽👽👽 Just kindly send all the good luck vibes you all can and imagine me still being here at LindaLand in my body for at least another 17 years😎💖🌈
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Lexxigramer Moderator Posts: 8649 From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion! Registered: Feb 2012
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posted August 03, 2022 11:09 AM
Aries Eagle:love Again I sincerely appreciate your replying to me: starheart: People seem to want to avoid me as if my multiple cancers are infectious and can be passed through he internet 😄👽 I also sincere hope my lack o belief in a god does not offend you💙😢 If so please consider this💙 I would not want for you to stop beliving if it works for you 💖 It just does not work for me😢 In fact I went through a time here at LindaLand when I actually had several Amazing experiences I mistook as being God inspired awakenings😳 I begin praying👽 I gave up red meat👽 Within a day after my posts announcing to all here at LindaLand my joy, my world begin disintegrating in vile miserable ways like Job of the,OT. 👽👽👽🤬 It was like something wanted to test me and torture me.🤬 If so then that was not God nor a good entity🤬👽 That is my take on the whole god issue nowadays; that if there was/is an entity out there posing as God it is a creature like the Evil Demiurge in the Gnostic works etcetera 👽🤬 I do not believe in an all wise all loving God at all. And ones such as others like Samael who and also known as The Evil Demiurge son of Sophia Mother of Wisdom. Not a thing to do with,Lucifer in the least, nada 😄I do not believe in gods or devils or any Satans. Okay was not intending to go on a theological rant but hoped it would help explain my aversions to anything that claims to be God and the people who claim it is absolut truth👽 Yeah just freaky how I was trying to do he right things to improve my life and Wham hit hard by the Job like curse or whatever👽 I gave up red meat and now cannot digest iron from plant matter and suppliments 👽😳😢 I now require weekiy intravenous iron infusions because I am severely anemic👽😢 And no one knows why👽 I was careful and told my body to heal my diabetes and God too st the time. Now I must drink quarts of high sugars in order for my blood sugar not to fall t low dangerous levels. Have a glucose injector now for emergencies👽😢😳 Ugh. And I continue to lose about a pound a day and no one knows why either😳👽😢 I should have stayed a vampire 😄😎💖🦇 consuming heme iron rich natural heavy nutrients like from Red meat💖😎 But I took advice from vegans and that led this nightmare👽 I gave up sugars. Now I suffer from hypoglycemia not hyperglycemia👽 Forgive me I am being a ta!bling fool today😳 Trying to not dwell on being ill makes my mind tend to wander all over the place😳😄 Thank you again for giving me caring attention Aries Eagle 💖🌈 Just a little goes a long way when one is drowning in those gloomy and doomy moments💙😎🌈 So thank you🌈😎💖 Pardon any typos or weird autofills 👽
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Randall Webmaster Posts: 162159 From: I hold a Juris Doctorate (J.D.) and a Legum Magister (LL.M.)! Registered: Apr 2009
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posted September 14, 2022 05:06 PM
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Lexxigramer Moderator Posts: 8649 From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion! Registered: Feb 2012
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posted September 16, 2022 10:42 PM
quote: Originally posted by Randall:
Thank you Randall❤️😎 Today's chemotherapy was a double one and it actually went prettying well despite taking about 5 and a half hours hooked up to the Chemotherapy drugs and and Heparin and very strong Steroids and two anti nausea drugs and and several saline infusion flushes. I hate sitting there so long😢👽 But it is needed 💙 A little worried because my white blood clot count is low which means a common cold is a very dangerous thing or any kind of infection when immunocompromised 😢👽 I do avoid getting exposed to people but yesterday had no choice because the electric company had to send a guy 👽👽👽 in to inspect our electric usage so we could get free LED light bulbs and a Brand new free refrigerator😎❤️ He was not masked and he told us because COVID in January along with his entire family👽🤬👽🤬🤬 He is an anti-vaccer🤬👽🤬🤬 Hopefully my vaccines will keep me safe from anything he may have brought in👽😢They were told we are both severely immunocompromised but still snt out a possibly infected person with no mask or gloves and an anti-vaccer to boit🤬👽 Well as long as we do not get sick from him We are getting a badly needed new refrigerator that costs more than an entire month of our income‼️😎❤️!😎❤️ We have needed one for like the past 6 yeas or so but could not afford it👽😢 Now we are going to try and get some help to get us a couple free natural gas heaters 💙 because we have no working furnace😢👽 and handicap rails to outside and inside💙 and so ene to kill all the stinging insect nests that are all over the house💙 and a portable folding wheelchair for me💙 and do not know how but we need a car 💙 because our has over 300,000 miles on it and needs more repairs tha we can afford👽😢 We must have a dependable car because we cannot use public transport for me👽😢 If I have no private transport my treatments for the cancers could come to a halt if the car stops working😢👽 Beng impoverished really sucks😢👽 Well I am doing my best to summon the things we need to live💙 The list is terribly long👽😢 Well barng any infections from the electric guy, We are getting a nice new refrigerator 😎😎😎 pardon any typos or strange autofills 👽
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