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Author Topic:   Is there anyone who wants to chat about daily challenges and life
saronna
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Posts: 1861
From: Sydney Australia
Registered: Jan 2010

posted October 30, 2023 07:14 AM     Click Here to See the Profile for saronna     Edit/Delete Message   Reply w/Quote
I'm really sorry Lexxi you are going through a really hard time and pain with cancer. I get very tired. I was going to enrol tomorrow in work and training course but I'm get very tired and just going to rest in bed for the next few years. I can watch Netflix movies in bed but I can't watch Netflix movies for a long time but sleep for about 18 hours and I have a support worker help me with showering and bathroom. I'm so sorry for your sister and what you went through and your husband. Lots of love and hugs ❤️

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teasel
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Posts: 29121
From: Here
Registered: Apr 2009

posted October 30, 2023 02:05 PM     Click Here to See the Profile for teasel     Edit/Delete Message   Reply w/Quote
quote:
Originally posted by Lexxigramer:
[QUOTE]Originally posted by teasel:
[b] Maybe. I'm freaked out over things in my life, but I've been okay once I'm up, most of the time.

I need to carve these pumpkins, but I've had a sinus headache all day and night, and I'm just not in the mood. I was going to block everything out this month, everything that I could, but I didn't manage it. I might try for Thanksgiving/Christmas, because I need to focus on things in my life. Grounded and focused.

My cat's cold isn't going away. He has FIV, and I'm wondering if he's going to have to go the vet regularly, as he was, just to get a shot to make him feel better. He was holed up in the little bedroom, until we finally got him back in, and after a few days, he flew into my room. He's been staying in my room again, for most of the week, but he was wheezing next to me, in his sleep earlier on.



I totally understand and have a very hard time to keep from freaking out too👽😭
Both my and my spouse's ill health and poverty plagues us so it is often a nightmare hard to cope for sure👽😭
The utter uncertainties of life and idiots from medical to grocery delivery and just about everything causing stress because of jerks who do not do their jobs right and do not care. Like giving wrong meds or other screwups and throwing groceries on ground instead of on steps and ruining groceries and then not ringing bell which means groceries can sit in blazing sun or rain or freezing snow and get totally ruined🤬
Oh my your poor kitty😭💙
That is an awful affliction for a cat😭
I lost some cats in years back in the 1990s
when FIV was pretty much an epidemic👽
I hope your kitty will recover soon💙
I have not carved a pumpkin in years because my semi paralysis makes it too difficult and dangerous to do 😭
Your biscuit experiment sounded at least interesting.
Strange that even the dog couldn't eat them though.👽

[/B][/QUOTE]

Thanks lexxi.

A few were actually soft enough to eat, but most were too hard, because of the cooking time. I don’t know why she said to cook them for so long.

I’m trying to wake up. I’m totally out of it today.

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Lexxigramer
Moderator

Posts: 9356
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted November 02, 2023 02:15 AM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
Thank you saronna❤️ and teasel❤️

Hope you both feel better today❤️😎
My 69th. Birthday is Friday same day as Lindaland's birthday😎
Might not be able to do much but lie in bed but hey after these past almost 4 nightmarish years👽😭
I am just happy to be at least still alive😎

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teasel
Knowflake

Posts: 29121
From: Here
Registered: Apr 2009

posted November 03, 2023 05:07 AM     Click Here to See the Profile for teasel     Edit/Delete Message   Reply w/Quote
quote:
Originally posted by Lexxigramer:
Thank you saronna❤️ and teasel❤️

Hope you both feel better today❤️😎
My 69th. Birthday is Friday same day as Lindaland's birthday😎
Might not be able to do much but lie in bed but hey after these past almost 4 nightmarish years👽😭
I am just happy to be at least still alive😎


Happy birthday Lexx.

My sinuses are fine tonight. I'm going to make something called swamp soup, to keep in the freezer, that has jalapenos in it, along with greens, garlic, etc. Someone posted the recipe, and several people said it cleared their sinuses.

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Lexxigramer
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Posts: 9356
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted November 03, 2023 06:45 PM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
quote:
Originally posted by teasel:
Happy birthday Lexx.

My sinuses are fine tonight. I'm going to make something called swamp soup, to keep in the freezer, that has jalapenos in it, along with greens, garlic, etc. Someone posted the recipe, and several people said it cleared their sinuses.


Thank you teasel❤️
Three people with d me a happy birthday so far❤️
At my age most forget 😳

Oh yes indeed swamp soup😎❤️😎
We call it fire soup and has about the same ingredients except for we use the semi ground red pepper seeds instead.
Yes totally helps clear ones head and sinuses 😎❤️
We also make a big batch to freeze to use as needed❤️😎

I did not get outside in the beautiful sunshine today as I was too shaky and weak 😭

But had Applebee's take out❤️
Could not eat it all 😳
so have leftover feast to devour tomorrow😎

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saronna
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Posts: 1861
From: Sydney Australia
Registered: Jan 2010

posted November 05, 2023 11:54 PM     Click Here to See the Profile for saronna     Edit/Delete Message   Reply w/Quote
Happy belated birthday Lexxi.❤️

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saronna
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Posts: 1861
From: Sydney Australia
Registered: Jan 2010

posted November 05, 2023 11:59 PM     Click Here to See the Profile for saronna     Edit/Delete Message   Reply w/Quote
I'm trying to decide to go back to college and do a certificate 1 preparation for work & training next year but I'm very tired. Today I'm very tired but I'm looking forward to having burger & chips and a chocolate milkshake.

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saronna
Knowflake

Posts: 1861
From: Sydney Australia
Registered: Jan 2010

posted November 06, 2023 12:21 AM     Click Here to See the Profile for saronna     Edit/Delete Message   Reply w/Quote
I hope swap soup cleared your sinus teasel and you can eat more Lexxi.❤️☺️

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Lexxigramer
Moderator

Posts: 9356
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted November 06, 2023 03:55 AM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
quote:
Originally posted by saronna:
Happy belated birthday Lexxi.❤️

Thank you saronna❤️

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Lexxigramer
Moderator

Posts: 9356
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted November 06, 2023 04:26 AM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
quote:
Originally posted by saronna:
I hope swap soup cleared your sinus teasel and you can eat more Lexxi.❤️☺️

Oh yes it works for sinus drainage😎
My trouble swallowing though is due to
poly-neuropathy and vagus nerve dysfunction so fire soup and swamp soup do not always help me eat😭
Now I am trying to figure out why I have to live on sugar as my blood sugar will not stay up no matter what I do👽
Going to have to get tested in depth by a specialist endocrinologist and neurologist and others.
Unexplained super hypoglycemia is rather creepy scary👽
Fighting cancer makes one's body do all kinds of weird things👽
Hopefully in 6 more months after the intravenous infusions of the genetic therapy will make my sugar be right and my weakness to let up. So damn exhausted and and extremely weak and semi paralyzed and barely able to even walk to toilet 😭
However holding on and hoping I will be better in the springtime 😎❤️

Trying to get some dental implants too if insurance will cover them as I cannot do dentures or partials due to inability to use my hands and eyes well enough to manage them. Also my body is absorbing my jaws👽👽👽Hopefully I can get implants so I can eat more like a normal person again😎

And hoping I can get my vision corrected somehow. The toxic eye drops recall by the CDC in January screwed up my poor eyes badly😭🤬

Okay must be off to bed, trouble sleeping too much pain and torsion spasms and nausea👽😭

Hey but I am still alive and looking forward to healing more ASAP 😎❤️😎❤️😎❤️

Go to college if you can😎
I was never able to go and now totally impossible to do so.
So if you can then do it😎❤️

I hope your doctors can figure out why you are so exhausted💙

If I can summon up the energy this week I am going to try and bake some catfish😎
Then try to oven fry some marinated tofu to make tofu taco filling😎
I eat it on quinoa.

I miss eating like a normal person💙
But I keep trying anyhow😎
It takes like an hour or more to eat a small amount of food.
I just have to nibble and try not to gag and choke.
I think the anti-cancer treatments are making my mouth and throat and esophagus raw and inflamed 👽 That causes painful esophageal spasms👽😭
So I just go very very slow and wait for the burning gripping spasms to let up betwixt bites of food.
The past few days it has not been as bad as before.😎
Just got to keep holding on and keep upbeat😎❤️
Okay must try to sleep now been rambling at you too much👽😳
Hope your day goes well.❤️😎

------------------
Take a look at my
LexIgramming/LexAgramming Biography

Nearly 2/3 of a century to date of
LexAgramming
Lexperience!🔠✍️

~I remember, therefore I am immortal~LEXX
~The present time is theirs, but the future is mine.~Никола Тесла

A room without books
is like a body without a soul.
-Marcus Tullius Cicero,
statesman, orator, writer
(106-43 BCE)
📚📖

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saronna
Knowflake

Posts: 1861
From: Sydney Australia
Registered: Jan 2010

posted November 06, 2023 06:12 AM     Click Here to See the Profile for saronna     Edit/Delete Message   Reply w/Quote
I'm really sorry Lexxi you go through so much. Don't give up Lexxi. There were days I felt like giving but I take one day at a time and try to be thankful for each day. There were some days I couldn't drink or eat something. I spent five years in bed I couldn't get up and walk to the bathroom without my support worker. I can just get out of bed and shower but I still very tired. I'm anaemic and iron tablets don't get absorb. I try drinking fresh juice and grape juice but I'm diabetics. I will try eating green leafy like spinach vegetables and some meat for iron and see if my body absorbs iron from meat and veggies.❤️🥰

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Lexxigramer
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Posts: 9356
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted November 06, 2023 03:15 PM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
quote:
Originally posted by saronna:
I'm really sorry Lexxi you go through so much. Don't give up Lexxi. There were days I felt like giving but I take one day at a time and try to be thankful for each day. There were some days I couldn't drink or eat something. I spent five years in bed I couldn't get up and walk to the bathroom without my support worker. I can just get out of bed and shower but I still very tired. I'm anaemic and iron tablets don't get absorb. I try drinking fresh juice and grape juice but I'm diabetics. I will try eating green leafy like spinach vegetables and some meat for iron and see if my body absorbs iron from meat and veggies.❤️🥰
I am glad you have a support person to help💙😎❤️
My husband and I do our best to help each other but there are too many times when we are both down and it is very hard to get through those times😭 He is totally disabled as so am I.
I hate having to use adult pads and all and the pads and diapers are very expensive 🤬😭
Also being allergic to cotton and plastics and adhesives 👽😳😭 makes using such things a big problem😭 So I do my best to at least crawl to bathroom on worse times at home and use the disposables only when I have to sit for 3 tom 5 hours at the cancer center for the intravenous infusions in my catheter port implant.
Since my surgeon removed the 7 pound tumour I have better control of my bodily functions 😎but getting to the toilet because of my legs is often an extreme effort. Sometimes my legs get paralyzed and I get stuck sometimes for hours on toilet👽😭
I hope to someday be able to bathe again. Tired of sponge baths and such.
Impossible to take showers or baths.
I loved baths ❤️so much and miss them terribly😭
Make sure you get a competent endocrinologist for your diabetes. Drs here totally screwed up on me and my husband with diagnosis not what they thought. We both have rare forms of it. My type is hypoglycemic non diabetic standard type unknown at this time,
his is hyperglycemic but we may have not type one or type two but instead rare forms from type 1.5 up to like type 20 or anything in between. Yes it seems there are some twenty forms of diabetes they only just realized , not just two types👽
Yes one must eat. I often must use meal replacement shakes. Sadly that means having to take lactase enzymes because I cannot digest milk.
Okay talk with you later saronna❤️
I will not give up at least not yet❤️😎

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Lexxigramer
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Posts: 9356
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted November 06, 2023 03:21 PM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
You may need to get intravenous iron infusions💙

I may need to get them again.
They helped bring my iron up to normal levels.
I am very very aneimic now though
so need them again.
Been trying to get it from food
but when one has trouble eating that does not always work.
Also with my digestive problems
I cannot absorb iron from foods or
supplements well.
Going to go back to trying meat sources like chicken livers which have 60% of daily iron in just a 4 ounce serving and enough vitamin C to assist in iron absorption.
You need adequate vitamin C to digest iron.

Okay take care saronna❤️

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saronna
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Posts: 1861
From: Sydney Australia
Registered: Jan 2010

posted November 06, 2023 03:42 PM     Click Here to See the Profile for saronna     Edit/Delete Message   Reply w/Quote
Thanks so much Lexxi. Take care❤️

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Lexxigramer
Moderator

Posts: 9356
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted November 06, 2023 06:57 PM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
quote:
Originally posted by saronna:
Thanks so much Lexxi. Take care❤️

You are welcome saronna❤️
What does your user name mean⁉️

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saronna
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Posts: 1861
From: Sydney Australia
Registered: Jan 2010

posted November 06, 2023 10:59 PM     Click Here to See the Profile for saronna     Edit/Delete Message   Reply w/Quote
Hi Lexxi.My username is my real name birth name it was a song my dad was singing on his way to hospital to get me when I was born and Saronna means Roses of Sharon. I looked up Google Saronna meaning and it's Latin for 'just'. I ate good today I have cheese & crackers and tomato and a organic oat slice from natural bakery and 2 boost juices immunity juices and that's a good day to eat some food and drink. I'm going have 2 boost immunity juices. I hope you have a better day you and your husband. Lots of love❤️

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Lexxigramer
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Posts: 9356
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted November 08, 2023 09:24 AM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
saronna❤️
Love your name and how you were given it by your father❤️
I adore the Rose of Sharon flowers and shrubs❤️
Glad you are able to eat good for the moment😎

Thank you for the kind wishes for my husband and I❤️
Hoping for a good day today❤️😎

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saronna
Knowflake

Posts: 1861
From: Sydney Australia
Registered: Jan 2010

posted November 13, 2023 04:42 AM     Click Here to See the Profile for saronna     Edit/Delete Message   Reply w/Quote
Thanks Lexxi❤️ I tried to cheer up today. It's a good night. I'm just enjoying my nephew's cat sitting on my bed and when it gets to much being in bed I sit on my sofa with my phone and write in my journal. Hope you are having a good day❤️

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saronna
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From: Sydney Australia
Registered: Jan 2010

posted November 13, 2023 05:20 PM     Click Here to See the Profile for saronna     Edit/Delete Message   Reply w/Quote
Just enjoying the day with my nephew cat. I try and cheer up it's a new day. I try and let noodles pet cat out to enjoy the day. Hope you are having a good day❤️

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saronna
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Posts: 1861
From: Sydney Australia
Registered: Jan 2010

posted November 13, 2023 06:10 PM     Click Here to See the Profile for saronna     Edit/Delete Message   Reply w/Quote
I have a nice warm shower and enjoying sitting in the sunshine ❤️

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saronna
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Posts: 1861
From: Sydney Australia
Registered: Jan 2010

posted November 15, 2023 01:19 AM     Click Here to See the Profile for saronna     Edit/Delete Message   Reply w/Quote
I'm enjoying today. I'm enjoying playing soulmate game. My nephew came over today really enjoyed his visit so good to have family visiting and company.❤️

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teasel
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posted November 16, 2023 09:01 AM     Click Here to See the Profile for teasel     Edit/Delete Message   Reply w/Quote
I was really dragging all day yesterday, and then couldn't get to sleep last night. I did get some sleep, and feel mostly better today, but I don't know how long that will last.

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teasel
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posted November 16, 2023 10:54 AM     Click Here to See the Profile for teasel     Edit/Delete Message   Reply w/Quote
I did make the swamp soup, but I didn't eat much. I wasn't sure about the taste. Most of it is in the freezer, and I might try it again later. I've been getting dizzy, yay sinuses. I don't need another month-long bout of vertigo. I'm back on my algae and colostrum, and sharing it with my dog.

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teasel
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posted November 28, 2023 01:09 AM     Click Here to See the Profile for teasel     Edit/Delete Message   Reply w/Quote
Hope everything's okay.

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saronna
Knowflake

Posts: 1861
From: Sydney Australia
Registered: Jan 2010

posted December 01, 2023 09:35 AM     Click Here to See the Profile for saronna     Edit/Delete Message   Reply w/Quote
Hope you are okay teasel

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