posted April 10, 2024 08:54 PM            

However betwixt health issues and all we are in danger of becoming homeless or worse.👽👺👽👹👽🤬😭

I do check in here at Lindaland so please do not think that I have left.
I check in at least a few times a week.
I also check my email for notices of replies but usually the replies are due to Randall kindly doing many bumps ups on my threads.❤️
If anyone replies to my threads it will show up in my email who actually replied to me.👍😎❤️
Really lies in threads not mine do not appear in email notices to me however.

Hopefully our situations here will improve soon.
Then I can get here into Lindaland more often and post much more.

Add in our old computers need replaced and life is often a nightmare these days due to health conditions issues and severe poverty.

Does anyone know how to do a
GO FUND ME thing⁉️⁉️⁉️⁉️⁉️⁉️⁉️⁉️⁉️⁉️

Poverty sucks and now city and government people want us to fix our house completely by July this Summer 👽😵🤬😭👽
Like wtf⁉️👽⁉️
Our property at present is not worth much and we simply cannot afford to do as ordered and that could lead to horrible things for us and to have to face 😭👽😭👽😭👽the consequences if ordered repairs are not done by July.

So if anyone has any ideas on how we can get help as we are a totally disabled impoverished household fighting serious issues as cancers and more nasty disabling issues and so we cannot do the work ourselves.

We are looking into more places to try and get help but so many are so called faith based Christian groups and organizations and not joking but very often if they discover people are not Christians then forget getting help.
Maybe not that way everywhere but it seems to be that way here more often than not.

Just like years ago when we went to get married at court house.....we were told that we had to agree to the standard Christian ceremony at the courthouse or could not get married there even though we had our marriage certificate.👽🤬😭

Okay thanks for reading this rant and pleas so far ❤️👍😎

If anyone knows how to remedy our situation please do tell.
We want to fix this place up and sell and move. But cannot do both.
Totally stuck with n bad circumstances and rather terrified to say the least.😵👽

Oh yeah get this....👽👽👽
We are not allowed to sell or give the house away until after all the property is brought up to code which involves repairs that exceed the tax value of the property by as much as 10x times👽👽👽
Or worse yet the seller value of around betwixt 20x or more the tax value.
This is a terrifying situation and our hands are tied tightly.
Feel like the sword of Damocles is hanging over our heads and lives ready to cut us down without wasting ning at any time👽😵

The house value is for taxes not sell value.
On the market it is worth only like $3 to 10 thousand or less.

We would love to move but our hands are tied
by unfair government and city ETCETERA rules and regulations.🤬👽

Okay enough of my griping and whining,

Bless you all❤️

Going to post this at Sweet Peas In The Rain also.

I will not flood the forums with my griping and begging and all.
I will use one thread at hearth and home to continue on this topic.

Please read there from hereon to reply to me and also to alert me to any post or thread which needs a reply from me if asked but I might have missed seeing the request.
Thank you all.
Blessings and Love ❤️❤️❤️
Please pardon any strange autocorrects and weird typos.
Cannot see or type easily.

posted April 11, 2024 08:12 AM            

Though this does seem typical of a City Council employing banal levels of evil and not taking into account the situation you are stuck in.

-=-=

Maybe this can help in some way, hope so anyhow.

GoFundMe Tutorial for Beginners
http://youtu.be/qhX_NHR4WsU?si=s2f6d5dZv-1tbY6x&t=204

Step 1: Go to the GoFundMe website
Visit the official GoFundMe website by typing http://www.gofundme.com into your web browser's address bar.

Step 2: Sign up or log in
If you already have a GoFundMe account, log in using your email address and password. If you don't have an account yet, click on the "Sign Up" button and follow the instructions to create one. You can sign up using your email address or through your Facebook account.

Step 3: Start a new campaign
Once you're logged in, click on the "Start a GoFundMe" button on the homepage. This will take you to a page where you can start setting up your fundraising campaign.

Step 4: Choose a category
Select the category that best fits the purpose of your campaign. GoFundMe offers categories such as Medical, Education, Emergencies, Memorials, and more. Choose the one that aligns with your fundraising needs.

Step 5: Describe your campaign
Give your campaign a title that clearly explains what you're raising funds for. Then, in the description box, provide more details about your situation, why you need the funds, and how they will be used. Be honest, transparent, and compelling in your description to encourage people to donate.

Step 6: Set a fundraising goal
Decide on the amount of money you want to raise for your campaign. Set a realistic fundraising goal that covers your needs but is also achievable. Keep in mind that GoFundMe charges a small fee for each donation, so factor that into your goal.

Step 7: Add a photo or video
Upload a relevant photo or video to your campaign page. This could be a picture of yourself or the person you're raising funds for, or a video explaining your situation and why you need support. Visual content can help make your campaign more engaging and persuasive.

Step 8: Share your campaign
Once your campaign page is set up, it's time to start sharing it with your friends, family, and social networks. GoFundMe provides tools for sharing your campaign via email, Facebook, Twitter, and other platforms. You can also copy the campaign link and share it directly with people you know.

-=-=-=-

Setting it up doesn't seem too difficult, the hard part is finding donors, but hopefully some folks on LL can help.

posted April 11, 2024 05:58 PM            

Thank you.
Sadly I only have 4 face book friends two are impoverished family and another is to my knowledge also impoverished.

Am not going to join Twitter or anything else.
Am at this time unable to do that.
For online Lindaland nis the only place I intend to keep being involved with.

Facebook barely.
And sites like FB are very hard to see.🕶️

Physically and stamina are shot and do not the and most sadly I do not this will work for us after all👽😭

Our friends have all died.😭😭😭
Many even younger😭

We have no social life in person as we are both severely immunocompromised and cannot be around people safely and both need walkers and braces and even wheelchair transport chairs at this time.
So we stay at home pretty much except for medical reasons.

So in addition to self quarantine we are physically unable to go anywhere and must save our severely limited energy for all medical things.

We have most of our food delivered.
It is a service need we must use.

We are usually unable to actually go into any stores betwixt seizures from the lighting
and being unable to walk to shop and even to use a motorized unit.
More difficult to impossible than most can understand.

Too much to explain.

Ugh.

I was afraid that the go fund me thing might be impossible for us.

I will look into it but seriously we have no in person social life including relatives because of COVID and too many people are anti-vaccers and the faith based organization workers often do not vaccinate🤬🤬🤬 or wear masks👽🤬
Too many we know of aquantences and even family have been hospitalized and too many have even died due to COVID👽😭
So no way do we do visits in or out of our home.

Too dangerous.👽😭

Then the problem of workers to help, how do we get them to wear masks and to prove they are not contagious and have had all 5 COVID shots and flu shots and more⁉️

Would love ❤️👍😎to get a big RV 😎👍 or mobile or portable tiny home ETCETERA, to live in in our driveway until the house if fixed.
Yeah even a big yurt would work temporarily as weather is arms up.👍😎

That would help us to not get infected with anything from multiple workers when or if we find any.

A common old can kill the immunocompromised about like the bubble boy.
We are both severely immune compromised and cannot help that the treatments of DMARDS and targeted cancer ETCETERA therapy and needed various steroidal meds means we are both severely immunocompromised and that is a sad fact that we cannot remedy.😭👽

Hope that eventually I can stop the DMARDS/target cancer infusions and the several other nasty meds,
It sucks when such as we are so must subject ourselves es to so many dangerous but required treatments

Scary desperate times.👽😭

Thank you again and will look into the
go fund me
thing but it looks like it will not help us and we are it appears most likely to not be able to do the whole outreach they need from us.😭👽😭 Not copping out just being realistic.

Hopefully some people will come forward and help who will respect our need for them to not infect us.

With money we could do this and pay to have it all done.😎👍 Money money money sigh it sucks to be deeply impoverished.😭😭😭

If we could just sell and move that is an option we have considered but the city ETCETERA will not allow us to sell or give it away until it is up to an impossible code level we have no way to honor.😭👽🤬
Yet their threats of do it all or else is terrifying👽👽👽

Going to write for some more grants.
So far no one is responding even though we are definitely eligible.
That is the city and government in a nutshell🤬
Threaten people then tell them tough luck pretty much and they are not very understanding.
Hence people living in tents and caves in the nature preserve betwixt north and south side of the city.👽👽👽

Hoping to get some help this weekend but not sure if it is going to work out or not.
How does a household plan and schedule when we are bed down in misery at any given moment without warning⁉️😭👽

On that note going to try and eat again.
So freaking nauseated and weak.

Yes with help to work on things we can get on track enough for the government and city to get off our case.
More ney and help is all we need to make our lives better.👍😎❤️

There are grants and loans we keep applying for.💲💲💲

We keep track of everything we are looking into and who bothers to reply and give us the three quotes on work needed done.
Yeah three quotes but are replying or answering their phones yet👽🤬

So we keep track of all our efforts and keep turning that information over to the city ETCETERA hoping to buy us time until at least November not freaking July 🤬👽

Yeah I am totally freaking out stressed out babbling again, sorry .
This is so damn embarrassing and humiliating today the last adt👽😭

And yes
We will look into the go fund me site ETCETERA but doubt it will halp us.
Thank you for giving the link.👍

Also sounds crazy but even going to see if the television show
THIS OLD HOUSE
would be willing to give us help and do the whole house ETCETERA if we agree to let them put it all on television.
Ugh hate that being exposed to social stress and potential infections but must look into all possibilities no matter how crazy they seem.

Once house is fixed we can then get treadmill and other rehabilitation things and handicapped items rails etc installed.👍❤️

Assuming there are reliable programs for such things.
But I he waiting lists are long.
Like one old guy needed a new toilet but in over 18 months no agency will help him and so he uses a bucket to go in.
Yes long waiting lists and folks get evicted and homes condemned instead of getting the needed halp.
Or the city and government just wait and hope we all die off.🤬👽😭

Sigh the city wants ramps but due to my strange collapsed spine condition and flat semi club feet and all, I cannot do ramps. And my spouse cannot wheel me up and down on such.
They also demand standard rail height which will not work for me and standard stair steps risers all up to code which are okay with most physically disabled people but not me due to many rare restrictions.

Oh my gone a babbling again,👽

I am embarrassed and feel weird and whiney posting my woes here but
seriously Lindaland 👍😎❤️is pretty much my social life and has been since 2005 and since then all our friends have died another just a month ago.😭

Okay off again...
Thank you lei_Kuei very much😎👍❤️
Your input is appreciated👍

Pardon as usual any strange autocorrects and creepy typos .
I cannot type or see well.

Thank to toxic drops the CDC recalled really messed me up bad. And a jerk doctor who did not properly test or treat me😭🤬

Anyhow take care and bless you Lei kuei 👍😎❤️

posted April 11, 2024 09:40 PM            

We also need to be able to fix the house up, and I hate that we haven’t been able to do it for ourselves, but we have to if dad wants to sell it (and he’s been talking about that). There is no way that our house is worth the new estimated selling price.

posted April 11, 2024 10:14 PM            

quote:

---

Originally posted by Randall:
GoFundMe can work spectacularly.

---

Will look into the GO FUND ME
But do not see how it would work for us.

I am expecting a miracle but do not sense it coming before our lives go totally beyond the hell we are already struggling to survive in.

posted April 11, 2024 10:39 PM            

quote:

---

Originally posted by teasel:
We are really broke, too, I’m so sorry.

We also need to be able to fix the house up, and I hate that we haven’t been able to do it for ourselves, but we have to if dad wants to sell it (and he’s been talking about that). There is no way that our house is worth the new estimated selling price.

I wish I could help.

---

We are not allowed to sell or give it away until it is brought up to code,👽🤬

The cost to bring it up to code as I explained in my reply to Lei_Kuei
far exceeds the sell value of betwixt 3 and 10 thousand dollars..
It would need about $40,000 just to repair cosmetically outside and fake it and over $100,000!to do it all out n and outside by the book.
That is simply impossible so we are stuck for now and do not know how To realistically escape this nightmarish dilemma.
Even the cost quoted
to take down old damaged trees is horrible with a quoted cost of $4,000 or more😵👽🤬
That is about a fourth of our yearly income and just for felling the trees they want felled.👽😵🤬

We were working on writing for grants ETCETERA but need more time.
The July deadline the city demands is totally unrealistically insane and illogical👽🤬😵
Trying to get city to back off until at least November.

Just have to keep trying.
But the other options of jail or worse are not acceptable.
The city does not care.
That is why there are people and families living in shanties and tents and even caves in the nature preserve.
Very cold places to live in in snowy cold winters.
And the city tries to evict people from there too👽👽👽

Hope the grants for free help and materials will come true.👍🕶️
We are writing for more and looking into every option possible.

It is so damn hard when we are both suffering
physically and expected to jump to like not disabled people.
👽😭

posted April 12, 2024 07:46 PM            

Which I know doesn't really suit your situation going by what you said.

How the City expects people to randomly pull 40-100k out of a hat for stuff like this is crazy...

Are they actually fully aware of your Medical Status, is there anyone in the City Council you could write to or talk with?

posted April 13, 2024 12:57 PM            

quote:

---

Originally posted by Lei_Kuei:
Yea even though the GoFundMe website has its own system for granting you some visibility and hopefully a few donations, it's also quite dependent on having some form of a social media presence, or a drive to constantly be putting it out there.

Which I know doesn't really suit your situation going by what you said.

How the City expects people to randomly pull 40-100k out of a hat for stuff like this is crazy...

Are they actually fully aware of your Medical Status, is there anyone in the City Council you could write to or talk with?

---

This is one reason why there are so many homeless folks even families living in various nature preserves and old abandoned factories etcetera.

Options when folks are not able to do anything the city demands is to fine and jail and also split couples especially elderly and disabled folks , or families up by putting the disabled and or elderly into separate rests homes which most considered as being the waiting to die places or worse as many have terrible conditions and take all of a persons rights away and even far worse things mot listing here.
Other things are to condemn ones home and take it without paying for it and shove people into sectional 8 apartments in places known for having much crime, crackheads, murder, rape, arson. Drive by shootings. Assaults and more.and and in horrible neighborhoods.
Before moving into our home in 2002 I was attacked more than once. Broke ribs and more running from a gun pointing running screaming crack head who claimed I had sent a werewolf into her shower. 👽😳🤬 Was assaulted in many other ways, and our vehicle too. Also the terror of repeatedly drive by bullets going right through into our apartment and more scary things.
And the police would just say move there is nothing they can do.🤬👽😳
So nope,
the city does not give a damn they only pretend to care by sending people out to ascertain how to make people leave their home or else take away all their person rights and property, invaded ng their privacy if they do not repair as they were commanded.

We need extra time to try and at least until November not July.
We are keeping in touch with the city people to keep on showing how we are trying but can only document our work trying to get help. Then prove to the city that no one is even answering their phones and also are too expensive.

We are still writing for free money grants.

We are suppose to get a cash settlement from my husband's mother's estate but that can easily take years even several years to get all done with probate.

No wat will it be here by this July.👽😭
Also the amount would still not be enough to do all the city demands and the temporary income boost could make the government take away our medical benefits and food stamps and more things we get for being poor disabled and elderly.

So it is a no win situation unless we're are allowed to wait until at least November not freaky by July.

We are writing grants and have a few faith based optics for handymen ETCETERA but they are very backed up and the waiting lists are months to years long for help from such places.
And people in their churches get help first as a general practice.
One old guy as I said lived for years without a toilet and they still never helped him that last I heard about it.

Trying to hold on as best we can.
Hoping the government grants or even the television show
THIS OLD HOUSE
will help us out.

Wish us good luck💙😎👍

Pardon any typos and or strange autocorrects.

An example here at Lindaland is poor Mirage😭😭😭

Being homeless or forced out of ones home sucks and often there is nothing that can be done easily at all 👽👽👽😭😭😭

PPS
Went through and fixed dozens of strange autocorrects and creepy typos.

posted April 13, 2024 09:16 PM            

Hopefully it will all work out.
It was extremely tiring but it was a good planning stage and visit ❤️👍😎

Totally worn out and going to go to bed soon.
But a productive afternoon nevertheless 😎👍

Of course we will still have to find people to do work they might not know how to do but hey things might be off to a great start hopefully👍😎

posted April 15, 2024 03:16 PM            

quote:

---

Originally posted by Lei_Kuei:
That's some positive news then, hope it helps the situation

---

Too bad that visit left us very ill worn out and maybe we both caught a bug😭

That is what immunocompromised is like to try and live with😵🤮👽

So we both have been vomiting since Saturday evening and in much physical distress within several hours after the two hour visit.😭😫🤮

On that note going back to bed betwixt vomit and gut agony bathroom trips.😭
My spouse has been bed bound for most of Sunday and Monday so far as have I.😭😫🤮

Just have to take things one at a time one moment at a time.

So freaking exhausting to say the least.

Well at least there is now hopefully some remedy for our situation.😎👍❤️

Okay going back down😴😪🛌😫😭🤮😴

posted April 26, 2024 01:32 PM            

Husband got rushed to emergency room and admitted to hospital due to needing several pints of blood transfusions because of severe anemia and they have no idea where he is loosing so much blood.👽👽👽👽👽👽
All tests and MRIS and cat scans and endoscopies and X-rays etc etc etc show nothing but ascites which is a huge build of up non blood fluid from head to toes👽😭
They had to put tubes into his chest and abdomen to drain the fluid that was making it difficult to breathe.
His waist went up some 30 inches rapidly and he was rushed to hospital😭😭😭
He has several very rare and very nasty eventually fatal diseases and even a liver transplant might not help in the long run👽😭

I am so tired of all of this and he is too.😭😭😭
And the fucktards at the city wants us to fix the house up and be done by July just 8 weeks from now⁉️😭🤬⁉️👽
Or go to court and jail etc.👽👽👽🤬🤬🤬😭😭😭

Okay rant over.
Just wanted to give update and apologize for not posting much of late.

I am still here if anyone wants to get in contact with me just post your request here even for lexigram/lexagram things.❤️
As bad as our world is for us,
Doing Lexagrams/Lexigrams helps me keep my sanity.😎👍

Bless you all and thanks for reading❤️😎👍

Sorry about strange autocorrects and creepy typos
Cannot see and type well and too exhausted to go check on and fix any errors at this time.

posted April 27, 2024 07:44 PM            

I would hope that if it actually went to court over your house situation, if made aware of the details... any sane judge would have to grant leniency given the circumstances.

Surely??

posted April 28, 2024 01:03 AM            

quote:

---

Originally posted by Lei_Kuei:
Damn, that sounds almost supernatural in regards to the missing blood...

I would hope that if it actually went to court over your house situation, if made aware of the details... any sane judge would have to grant leniency given the circumstances.

Surely??

---

Like accusing him repeatedly about being a drunk when he never drinks and his condition is a very rare liver disease that is never caused by drinking.
Called PCS.😭
It is an autoimmune disease and hereditary.

The diagnosis is in his chart THAT HE IS NOT A DRINKER but the bittches still kept accusing him of being a bad drunk🤬

I will be talking to Ombudsman and attorney for what they did to him and me.🤬😭👽

Like giving him the wrong medicine and not
Keeping watch on him and he almost went into coma but they did not document their screw up.
They refused four times when I called to let me talk to him and 4 nurses told me radically different stories about his condition and all were radically different🤬

Like when he was having seizures they never consulted his numerologist and gave him a drug that could have killed him.🤬😭👽
He begged them to let him call me because he knew something hing was very wrong and that I have been taught by our neurologist how to handle his intractable rare type aphasic seizures.
The refused and told me to stop calling.
Finally he called me after some 3 hours of their negligence and incompetency.
He was not himself and it took me over 3 or more hours to talk him back to normalcy as instructed by our neurologist.🤬😭👽
He did not know his name etc and could not speak just moan .....
The nurses kept going on about how he was just a complaining drunk or druggie😭👽🤬
The nurses did far more horrible things not going to list here but an attorney might be very interested and the Ombudsman also.

Oh yeah the neurologist knows that fluorescent lights and even Xmas lights and computer screen flicers or scrolling fast with cause him to go into staring apzoning mode unable to speak or move.😭👽🤬
But they refused to listen to me and refused to call his neurologist 🤬
They purposely kept the lights on high bright and would not let him water his sunglasses and sun visor as instructed by his neurologist to help him not go into a seizure state.
Seems they gave him an epileptic seizure drug that is extremely dangerous to a person with his type of aphasia and it could have killed him,👽😭🤬

Have not slept for over a day now so must now that he is back home.

As far as city giving us a grace period or a judge who might grant mercy ETC is possible as we have many pictures showing progress being made.
But if we go to court we would get them all cranked up and they would split us up and put us in prison and or each in a separate nursing home because we are both disabled.

So we do not want to get to that point.
Courts do not show mercy to poor elderly disabled folks mercy usually.
Easier to put them in waiting to die places separated and throw away the key so to speak.🤬😭👽

posted May 03, 2024 11:56 AM            

I am going to tell my oncologist that I am done fighting the cancer and want the chest port out until at least November and put back in only if it needs to be surgically replanted in my chest if I relapse and need more chemotherapy.
I AM BEYOND TOTALLY TIRED Physically and mentally AND TIRED IF THE CHEMOTHERAPY CAUSING MORE PARALYSIS ETCETERA.

I NEED AT LEAST A BREAK FOR SEVERAL MONTHS TO TRY AND HEAL FROM THE CHEMOTHERAPY WHICH ALSO SEVERELY DAMAGED MY AND HEART CENTRAL NERVOUS SYSTEM AND IS DESTROYING MORE THAN HELPING AT THIS TIME.
NO ONE TOLD ME THAT THE CHEMOTHERAPY THAT COULD HOPEFULLY CURE THE CANCER WOULD CRIPPLE ME FAR BEYOND HOW BAD I WAS PHYSICALLY BEFORE CARDIOTIXIC AND NEUROTOXIC CHEMOTHERAPY INTRAVENOUS INFINFUSIONS.
I NEED TIME TO CARE FOR MY HUSBAND AND CANNOT AFFORD TO LET THE CHEMOTHERAPY KEEP ON DESTROYING MY NERVOUS SYSTEM AND HEART AND MUSCLES AND MY BONES ETCETERA.

AND IF MY HUSBAND IS NOT GOING TO MAKE IT THEN I HAVE ABSOLUTELY NO DESIRE TO CONTINUE ALONE.😭😭😭
WE HAVE BEEN TOGETHER ALMOST 27 YEARS ❤️❤️❤️AND I WANT MORE TIME SOMEHOW.

posted May 03, 2024 01:22 PM            

I AM TERRIFIED AND HE IS IN HIRRENDOUS PAIN😭😭😭

posted May 03, 2024 02:55 PM            

I AM NOT COPING WELL.

CITY MAKING UNREALISTIC DEMANDS ON US

MY HUSBAND GRAVELY ILL AND WAITING LISTS FOR A DONOR LIVER ARE LIKE UP TO 5 YEARS
WHICH HE DOES NOT HAVE TIME FOR SUCH A LONG WAIT.
A LIVING DONOR WOULD BE GREAT BUT HE HAS NO CLOSE RELATIVES.

OKAY MUST GO BEFORE I COLLAPSE AS I AM TOTALLY IN FREAKOUT HOPELESS HELPLESS MODE FALLING DEEPER EACH MOMENT INTO THE DEEPEST DARK ABYSS OF HELL ON EARTH AND IN TOO MUCH PAIN MYSELF TO BOOT.

HE IS RESTING BUT I AM AFRAID TO SLEEP.

HE GAINED 50 POUNDS SINCE MARCH
AND 20 OF THOSE POUNDS IN THE PAST WEEK AND THEY DO NOT KNOW WHY.

SEEMS THE MEDICAL PEOPLE HERE ARE FREAKING MOST LIKELY CLUELESS ON HOW TO HELP HIM.
HE HAS BEEN REFERRED TO THE BIG CITY HOSPITALS AND DOCTORS.

MANY TYPES OF SURGERY TO DO ASAP AND ALL KINDS OF PAINFUL TESTING ETCETERA.

HE IS ON LIKE 30 DRUGS NOW.

I AM SO TERRIFIED AND LOST.
MY CANCER NEVER HIT ME LIKE THIS IS HITTING ME.

posted May 04, 2024 07:53 AM            

Granted, given his liver and hereditary blood problems the possibility of needing a transplant I'm sure has always been in the back of your mind, but the realization of him needing one asap and the likely waiting list time... yea, anyone would be filled with a sense of despair in the same circumstances :::Hugs:::

It's often clear to me that the universe is simply a relentless meat-grinder of agony that never seem to let up even when we are on the brink... which I often feel can be the worst part of being an Atheist in that sense, where there is no God to blame or curse for our own individual dilemmas, and none to pray too either for help... it's just us (and the support of each other) against the Machine, and the Machine does not care for the folly of man. Our only solace in such things (or mine anyhow) is that the Universe is just as helpless against our unwavering desire to seek out our own happiness, even beyond death... it can win rounds against us no doubt, and sometimes you have to hold up your arms and say 'yea, you got me this time... '.

Nobody can ever say you haven't been giving it your ALL in regards your fight even just to stay alive under the most horrendous circumstances, I don't know how you do it... and have kept doing it, I don't believe I myself would have been able too...! And I feel any words or sentiments reassembling hallow platitudes are not something I can stomach right now, I wont say everything is simply going to work out and to have rainbow levels of hope... because that is just not dealing with reality. I am however deeply sorry both you and your husband have had to endure such rapidly declining health problems, and for that you have my heart-felt sympathies. I know that if PixieJane were here (PJ is without Internet or the means to access it currently) she would be very upset reading of these recent events and would likely have far better advice or suggestions in how to offer some practical help, or who might one contact even when dealing with just the City Council... but all I can offer in her stead is her sympathies for all you have to endure at the moment.

Both you and Steve have been in my thoughts alot recently, and this one is for 'Y & T'.

posted May 04, 2024 11:28 PM            

YES THE IDIOT SO CALLED PROFESSIONALS HERE HAVE INDEED PRETTY MUCH GIVEN UP AND HAVE SAID HE MUST GO TO THE BIG CITY FOR MUCH OF HIS DIAGNOSES AND TREATMENTS.
Our city has under 20,000 people whereas the bigger city harder to get to is farther away and has a population of I think millions.
Update here......
GOT NEWS BACK THIS MORNING....
indicating that yes it is bad but not immediately as bad as the morons in the local hospital told him and the definite freaking morons in the emergency room said.
He will need at least yearly endoscopic type surgeries to go in and rotorooter out all his various bodily duct work in pretty much every physical natural tube and duct in his entire torso and all internal organs except for the heart and lungs to open all ducts up as needed repeatedly as they scar up and become
restructured and blocked again.
Also regular abdominal parecetistis to remove the 10 to up to 40 pounds of fluid that builds up the n his abdominal cavity making breathing and moving around and sleeping very difficult.
They drained with big needle and tubes 6 liters of fluid last week but he is swollen up again and gained another 10 pounds.,he has
gained 60 pounds since February, with 49 pounds of that in just the past month
due to the severe ascites.
Extremely painful and disabling to say the least.

Still do not have all the answers yet and he had been taking care of me with my cancer and the blindness episode from the toxic eye drops and pushing my wheelchair to all my infusions amd more and was over a year overdue for many tests and yearly scopings and or surgeries and MRIs and cat scans ETC needed to be able to ascertain exactly what surgeries he must have as needed.
Yes I chewed him out big big time as I did not know he had blown off his appointments being how very ill I had been since 2019.
I will be keeping a very very very close eye on him from hereon to see that he takes better care of himself by keeping up with the tests etc.
He had been so busy with his own terrible pain from his many other disabling conditions and fighting the city and all for the past few years and our deeply impoverished lives, and then cancer hit me bad and the past two years have been a nightmare for both of us. Even without the liver disease his intractable migraines for which the doctors say the only cure for them is a frontal lobe lobotomy. They are very horrible.
Yes brain surgery to cure such migraines that caused serious aphasic zone out not spasm seizures. So he is and has been stressed to the breaking point too.
Hopefully we can somehow move forward from hereon.
Yes he is still in danger but perhaps there is still a good chance for things to get better and at least not worse off immediately or immediately terminal.
My son remarried and his new wife is a sweetheart unlike his first one so we are communicating again and they are going to try and help us fix our abode up and yard and all to help us get the city off our backs.
Still need to beg city for more time because expecting us to be getting money and things done as they demand by July is unrealistically insane.
My son and his wife are both teachers and impoverished too so can only offer physical assistance. I only just met his new wife and it has had been about 12 years or so last time we communicated.
Strange how things time out as needed. Like until a few years ago he lived over a
thousand miles away.then about 80 miles away but now is moving to my first ex husband's house his father, and where I use to live.
So now he is less than an hour drive from us instead of several or up 16 hours drive.

The stress and all is playing hell with our other conditions and so we are weak and stressed and feel more sick than we should have to be.

On that note must crash for now and thank you again for your post and all❤️👍😎
Oddly you have been on our minds off and on for the past few months.
Wonder why.
Hope you have been doing okay and are well these days.
Hugs

posted May 08, 2024 11:25 PM            

We have a pretty good idea what the real problem is but doctors think they are gods and refuse to hear us out or even test for the obvious.

Enlarged spleen cause every single problem he is having including the 8 liters of peritoneal ascites they removed and he has filled back up again and liver function is normal and only severe unexplained anemia remains aside the severe ascites.

Why are they not addressing the damaged spleen caused by previous problems they partially caused?

Ok rant over but we are scared sad and exceptionally angry at medical incompetence and gross negligence.

Thanks for reading.
Wish us well and good luck with getting well and financially.